![]() |
customer@davidpublishing.com |
![]() |
3275638434 |
![]() |
![]() |
| Paper Publishing WeChat |
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License
Roles of Customs, Cultures, and Languages in Informed Consent
Alfred P. Minei
Full-Text PDF
XML 701 Views
DOI:10.17265/2159-5542/2025.03.004
University of Papua New Guinea, Waigani, Papua New Guinea
The work in this paper is based on primary research on how to obtain informed consent to medical treatment and or procedure among patients; this study was carried out in Papua New Guinea in both urban and rural health settings across customs, cultures, and languages in two provinces, on the basis of qualitative interviews with healthcare professionals including doctors, nurses, other healthcare workers, patients, and traditional healers. We emphasize the views of consent with participants of customs, cultural, and languages regarding informed consent. There are factors between peoples of differing circumstances which can greatly alter how they view consent. Some groups would involve people in the decision-making process that may not traditionally be involved in the decision making of a medical decision. Other groups may dislike certain medical procedures as in Papua New Guinea (PNG). And certain people have different views on what should be disclosed of the patient’s condition. Customs, cultures, and languages are common phenomena which continue to affect the daily lives of many thousands of people. It is unclear in PNG about the characteristics of customs, culture, and language on health care because there is no published information on informed consent and issues that affect the making of informed consent.
customs, culture, language, informed consent
Psychology Research, March 2025, Vol. 15, No. 3, 133-148
Allmark, P., Boote, J., Chambers, E., Clarke, A., McDonnell, A., Thompson, A., & Tod, A. M. (2010). Ethical issues in the use of in-depth interviews: Literature review and discussion. Sheffield Hallam University Research Archive (SHURA). Retrieved from http://shura.ac.uk/1372/
Berg, J. W., Applebaum, P. S., Lidz, C. W., & Parker, L. S. (2001). Informed consent: Legal theory and clinical practice. Oxford: Oxford University Press.
Chaturverdi, S. (1994). Exploration of concerns and role of psychosocial interventions in palliative care—A study from India. Ann Acad Med Singapore, 23, 256-260.
Chima, S. C. (February 2018). An investigation of informed consent in clinical practice in South Africa (Thesis for the Doctor, University of South Africa, 2018).
Culver, C. M., & Gert, B. (1982). Philosophy in medicine: Conceptual and ethical issues in medicine and psychiatry. New York: Oxford University Press.
Dein, S., & Kamaldeep, B. (2005). Issues concerning informed consent for medical research among non-westernized ethnic minority patients in the UK. Journal of the Royal Society of Medicine, 98, 354-356.
Douglas, G. A. (2007). Informed consent for
all! no exceptions. N.M.L. Rev., 37,
39-83. Retrieved from https://digitalrepository.unm.
edu/nmlr/vol37/iss1/4
Gel Del, C. M., & Joffe, S. (2005). Informed consent for medical treatment and research: A review. The Oncologist Medical Ethics, 10, 636-641.
Guzder, D. (2009). When parents call god
instead of the doctor. Time. Retrieved
from http://.www.time.com/time/nation/article/
0.8599.1877352.00.html
Hallinan, Z. P., Forrest, A., Uhlenbrauck, G., Young, S., & McKinney, R., Jr. (2016). Barriers to change in the informed consent process: A systematic literature review. IRB: Ethics & Human Research, 38(3), 1-10. Retrieved from http://thehastingscenter.org/for-media/
Harrigan, J. A., Gramata, J. F., Lucic, K. S., & Margolis, C. (1989). It’s how you say it: Physicians’ vocal behavior. Social Science and Medicine, 28(1), 87-92.
Hiroyuki, H., Salzberg, S. M., Kiang, W. P., Tatsuya, F., Yutaka, T., & Furuno, J. (1991). The patient’s right to information in Japan legal rules and doctor’s opinions. Sec. Sci. Med., 32(9), 1007-1016.
Husain-Gambles, M., Leese, B., Atkin Brown, J., Masson, S., & Tovey, P. (2004). Involving South Asian patients in clinical trials. Health Technol Assess, 8, 73-79.
Joseph, M., Francis, M., Malcolm, M., Paul, N., & Abdullah, C. (2008). Why do people refuse to take part in biomedical research studies? Evidence from a resource-poor area. Malawi Medical Journal, 20(2), 57-63.
Marshall, P. A. (2007). Ethical challenges in study design and informed consent for health research in resource-poor settings. Geneva, Switzerland: TDR/World Health Organization.
Marshall, P. A., Adebamowo, C. A., Adyemo, A. A., Ogundiran, O. T., Vekich, M., Strenshi, T., … Rotimi, N. C. (2006). Voluntary participation and informed consent to international genetic research. American Journal of Public Health, 96, 1989-1995.
Meisal, A., & Roth, L. (1983). Towards an informed discussion of informed consent: A review and critique of the empirical studies. Arizona Law Review, 25, 267-346.
Minei, A. P., Arafia, R. A., Kaipu, S. O., & Minei, J. M. (2020). Physicians’ perspectives of informed consent for medical procedures: A qualitative interview study. Journal of Health Science, 8, 9-26. doi:10.17265/2328-7136/2020.01.000
Minei, A. P., Rachelyn, A. A., Ronald, R. R., Jr., & Kaipu, S. O. (2019). The landscape of the legal aspects of informed consent for medical treatment in Papua New Guinea. Journal of Health Science, 7, 337-349. doi:10.17265/2328-7136/2019.06.002
Minei, A. P., & Kaipu, S. O. (2020). Respect for patients’ right to autonomy. Journal of Health Science, 8, 100-112. doi:10.17265/2328- 7136/2020.03.004
Murray, T. (1994). Individualism and community: The contested terrain of autonomy. Hastings Center Rep, 24, 32-35.
Parmar, P., Gunvanti, B. R., Sangita, R., & Ashish, P. (2016). Consent in medical practice-perceptions of patients towards legal aspects of informed consent. International Archives of Integrated Medicine, 3(4), 105-110.
Richards, B., & Louise, J. (2014). Medical law and ethics. A problem-based approach. Australia: LeisNexis Butterworths.
Saldov, M., Kakai, H., McLaughlin, L., & Thomas, A. (1998). Cultural barriers in oncology: Issues obtaining medical informed consent from Japanese-American elders in Hawaii. Journal of Cross-Cultural Gerontology, 13, 265-279. Retrieved from http://download.springer.com/static/pdf/740/art%253A10.1023%252FA%253A1006532713142.pdf?auth66=1418845096_8cecc436ef33954bce47e27581bbe90d3&ext=.pdf
Saxena, S. (1994). Quality of life assessment in cancer patients in India. In J. Orley and W. Kuykyn (Eds.), Cross cultural issues in quality life assessment: International perspectives (pp. 99-107). Berlin: Springer-Verlag.
Sugarman, J. (2015). Informed consent: Why do we care? Informed consent and health literacy: Workshop summary. Washington D.C.: The National Academies Press. Retrieved from www.nap.edu
US Government Printing Office. (1982). The report of the president’s commission for the study of ethical problems in medicine and biomedical and behavioral research. Volumes 1, 2, and 3. Washington.
Victoria Law Reform Commission (LRCV). (1987). Informed consent to medical treatment. Discussion Paper No. 7. Melbourne.




