Paper Status Tracking
Contact us
[email protected]
Click here to send a message to me 3275638434
Paper Publishing WeChat

Article
Affiliation(s)

Carl von Ossietzky University Oldenburg, Oldenburg, Germany

ABSTRACT

“Identify the significant predictors of a life of quality and evaluate the impact of targeting resources to maximize their positive effect(s)” (Schalock, 2000, p. 125). This is No. 7 of Schalock’s ten fundamental QoL (quality of life) guidelines. By stressing the words “significant predictors”, one comes to the question: Is there an appropriate instrument referred to people with autism? This paper will describe the creation of an assessment instrument for those people. The measurement we are developing will collect data with regards to the QoL of people with ASD (autism spectrum disorders), it will be designed by and for people with ASD. The instrument will be useful to practitioners and parents in inclusive settings and beyond. First of all, it could be a help for the people with autism because it will dependably measure the QoL of the affected people. In this paper, the first steps up to the construction sample will be described.

KEYWORDS

QoL (quality of life), life satisfaction, ASD (autism spectrum disorders), measurement, participative research, inclusion

Cite this paper

Carmen Feldhaus. (2015). Quality of Life—Development of an Assessment for People With Autism. Psychology Research, 5(5), 327-337.

References

Angermeyer, M. C., Kilian, R., & Matschinger, H. (2000). WHOQOL-100 und WHOQOL-BREF: Handbuch für die deutschsprachige Version der WHO-Instrumente zur Erfassung von Lebensqualität. Göttingen: Hogrefe.

Auyeung, B., Wheelwright, S., Allison, C., Atkinson, M., Samarawickrema, N., & Baron-Cohen, S. (2009). The children’s empathy quotient and systemizing quotient: Sex differences in typical development and in autism spectrum conditions. Journal of Autism and Developmental Disorders, 39, 1509-1531.

Bergold, J., & Thomas, S. (2010). Partizipative forschung. In G. Mey, & K. Mruck (Eds.). Handbuch qualitative forschung in der psychologie (pp. 333-344). Wiesbaden: VS.

Billstedt, E., Gillberg, I. C., & Gillberg, Ch. (2011). Aspects of quality of life in adults diagnosed with autism in childhood: A population-based study. Autism,15(1), 7-20.

Bowler, D. (2007). Autism spectrum disorders: Psychological theroy and research. New Jersey: Wiley.

Bühner, M. (2006). Einführung in die test- und fragebogenkonstruktion. München: Pearson.

Cottenceau, H., Roux, S., Blanc, R., Lenoir, P., Bonnet-Brilhault, F., & Barthélémy, C. (2012). Quality of life of adolescents with autism spectrum disorders: Comparison to adolescents with diabetes. European Child & Adolescent Psychiatry, 21, 289-296.

Diekmann, A. (2003). Empirische sozialforschung. Reinbek: Rowohlt.

Diener, E. (2009). Assessing well-being: The collected works of Ed diener (Social Indicators Research Series 39). Heidelberg: Springer.

Diener, E. (2009a). The science of well-Being: The collected works of Ed diener (Social Indicators Research Series 37). Heidelberg: Springer.

Fahrenberg, J., Hampel, R., & Selg, H. (2010). Freiburger persönlichkeitsinventar (FPI-R). Göttingen: Hogrefe.

Fahrenberg, J., Myrtek, M., Schuhmacher, J., & Brähler, E. (2000). Fragebogen zur lebenszufriedenheit (FLZ). Göttingen: Hogrefe.

Frisch, M. B. (2006). Quality of life therapy: Applying a life satisfaction approach to positive psychology and cognitive therapy. New Jersey: Wiley.

Gerber, F., Baud, M. A., Giroud, M., & Galli Carminati, G. (2008). Quality of life of adults with pervasive developmental disorders and intellectual disabilities. Journal of Autism and Developmental Disorders, 38, 1654-1665.

Gillberg, I. C., & Gillberg, C. (1989). Asperger syndrome—Some epidemiological considerations: A research note. Journal of Child Psychology and Psychiatry, 30, 631-638.

Ikeda, E., Hinckson, E., & Krägeloh, C. (2014). Assessment of quality of life in children and youth with autism spectrum disorder: A critical review. Quality of Life Research, 23, 1069-1085.

Jennes-Coussens, M., Magill-Evans, J., & Koning, C. (2006). The quality of life of young men with asperger syndrome. Autism, 10(4), 403-414.

Kamio, Y., Inada, N., & Koyama, T. (2012). A nationwide survey on quality of life and associated factors of adults with high-functioning autism spectrum disorders. Autism, 17(1), 15-26.

Kemmis, S. (2006). Participatory action research and the public sphere. Educational Action Research, 14(4), 459-476.

Raab-Steiner, E., & Benesch, M. (2012). Der fragebogen. Wien: Facultaswuv.

Reason, P., & Bradbury, H. (2008). The Sage handbook of action research: Participative inquiry and practice. London: Sage.

Renty, J., & Roeyers, H. (2006). Quality of life in high-functioning adults with autism spectrum disorder: The predicative value of disability and support characteristics. Autism, 10(5), 511-524.

Schalock, R. L. (2000). Three decades of quality of life. Focus on Autism and Other Developmental Disabilities, 15, 116-127.

Sheldrick, R. C., Neger, E. N., Shipman, D., & Perrin, E. C. (2012). Quality of life in adolescents with autism spectrum disorders: Concordance among adolescents’ self-reportsparents’ reports, and parents’ proxy reports. Quality of Life Research, 21, 53-57.

Shipman, D. L., Sheldrick, R. C., & Perrin, E. C. (2011). Quality of life in adolescents with autism spectrum disorders: Reliability and validity of self-reports. Journal of Developmental and Behavioral Pediatrics, 32(2), 85-89.

Shore, S. M., & Rastelli, L. G. (2006). Understanding autism for dummies: A reference for the rest of us. New Jersey: Wiley.

Skevington, S. M., Lotfy, M., & O’Connell, K. A. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial (A report from the WHOQOL Group). Quality of Life Research, 13, 299-310.

Tebartz van Elst, L. (2013). Asperger-syndrom und autismusbegriff: Historische entwicklung und modern nosologie. In Tebartz van Elst, L. (Ed.) (2013). Das asperger-syndrom im erwachsenenalter (pp. 3-12). Berlin: MWV.

Wing, L. (1981). Asperger’s syndrome: A clinical account. Psychological Medicine, 11, 115-129.

World Health Organization. (1946). Constitution of the World Health Organization. In F. P. Grad (Ed.) (2002), The preamble of the constitution of the World Health Organization. Bulletin of the World Health Organization, 80(12), 983-984.

World Health Organization. (1997). WHOQOL: Measuring quality of life. Geneva: WHO (WHO/MNH/PSF/97.4).

About | Terms & Conditions | Issue | Privacy | Contact us
Copyright © 2001 - David Publishing Company All rights reserved, www.davidpublisher.com
3 Germay Dr., Unit 4 #4651, Wilmington DE 19804; Tel: 001-302-3943358 Email: [email protected]